Sometimes, telling about Dax’s days gets redundant. He’s sick, he’s tired, he’s in pain, etc etc..again and again. Today is okay or today is not okay. Some days are better than others, but Ehlers-Danlos is every single day. We have learned so much and in so little time. We choose to share.
So, today is a mostly rest day, and..
I’ll share this slideshow link: 👉🏻 A KID LIVING WITH EHLERS-DANLOS SYNDROME