Dax-man’s journey started a long time ago (for his young age). He has classical Ehlers-Danlos Sydrome (with a COL5A1 mutation). 

You can also see how this craziness began in his life and what we have shared so far. 

Click here to visit.

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* Or, you can visit a short overview.


His days’ abilities range from wheelchair bound to active. He feels badly every day on different levels. We have learned to accommodate him with Ehlers-Danlos the best we know how. It is a constant learning process, which me must adapt to and educate ourselves on. 

We cherish each moment. Hopefully, by sharing his journey we will help others.